I apologize in advance for all of the rambling and random stories. I’m feeling chatty today. Perhaps making up for the radio silence?
The week before last we took the boys to a LONG overdue dentist appointment. (Funny story – not long after D was released to the hospital, we get yet another reminder call that Dawson and Wes were overdue for dentist appointments. I was tired, and annoyed that day, so I told the poor person who was calling exactly why making a dentist appointment wasn’t exactly a priority for me at that time. Not long after that, she called back and asked if they could send D something. I’m not sure what I expected them to send, but I certainly didn’t expect the giant cookie bouquet we received!)
Anyway, the boys went to the dentist. The awesome news is that neither boy had any cavities! I was worried about Dawson – really worried – because of how sick he was last summer. He vomited so much that I was sure he’d have issues. But nope! His teeth look good, thank goodness. Poor Wes is another story. You know your kid is in for years of dental work when they start explaining orthodontia to you. Sounds like we are in for some dental work for Wes once he gets in his 6 year molars. Wesley’s mouth is SO cramped. His teeth are crooked, off center, AND his bite is funny; some of his top teeth go over his bottom, and some of his bottom teeth go over his top. Yikes! So basically, D runs up our medical bills, and Wes is looking to run up our dental bills. Sounds about right. :)
A few weeks ago, before Easter, Wes was diagnosed with a strep infection. They prescribed amoxicillin for him, and I asked Wes ahead of time if he wanted a liquid med, or a pill like Dawson. It was no surprise that he said he wanted a pill. I got a little a little pushback from the nurse (“He’s four. Are you sure he can take a pill?” – Of course I’m sure!), but they prescribed it. Wes was so proud to be taking pills like a big boy. Pretty sure one of the first things he told my brother was “I’m taking meds like Dawson!” He’s so funny.
Dawson and Wes are really into listening to their favorite songs on youtube and watching the videos. They are big into the movie Frozen, and can sing all of “Let it Go.” Dawson even tries to hit the high notes. It’s the best. I didn’t realize how into the movie the boys were until the day I was in the bathroom and there was a knock on the door, and then Dawson sang “Do you want to build a snowman?” Pretty sure I laughed so hard I was almost crying.
Wesley has had some funny moments in the night. There was one night I was sleeping with him last summer where he started clapping in his sleep. Last weekend he was sleeping with me when I woke up to him saying “Mommy…high-five!” in his sleep – and sure enough, he was laying there, eyes closed, with his hand outstretched. I gave him “five” and he put his hand back down and didn’t make another peep.
Dawson is doing awesome overall. He’s really getting better at wearing his feet. This past Thursday, he had his first PT session in a few weeks. He did amazing, as usual. He worked so hard that morning that he was visibly sweating and flushed about 20 minutes in. He worked on his balance by standing on a balance beam and using a “bat” to hit stuffed animals that were thrown at him. He ran down the hallway, and then practiced his posture by walking holding a 7lb ball. He ran on a treadmill for 6 minutes (probably a good 4 minutes longer than I could!). And he laid on the floor, legs up on a ball, stretching his hips.
D impressed us by still having his feet on when we picked him up from daycare that night. D’s limit is usually from 7am-3pm, and by 3, he’s done (pretty understandably). Thursday, Dawson wore his feet from 7am-7pm. Twelve full hours! He did great; he didn’t complain at all.
We also got a pretty neat ok at PT on Thursday: Dawson no longer needs to wear his knee immobilizers every night at bedtime. That’s awesome. D has been wearing the immobilizers basically since he went into the hospital, first most of the day, then off when he was not sleeping (still wore them for naps and bedtime), then only for bedtime. You never really think about the mobility of your knees until you see it first-hand. For those of us that walk every day, it can be a given that you can stand up straight, knees locked. For someone like Dawson, who wasn’t walking most of the time, his inclination is to keep his legs bent. Fortunately, Dawson is to the spot in his rehab that he is wearing his feet at least 50% of each day, meaning that there isn’t as big of a concern about him losing the ability to fully straighten his leg. Dawson’s therapist told us we could let him stop using his immobilizers, as long as we keep a close eye on his knees. D is SO used to using them that we let him decide what to do about it, and he’s decided to wear them every other night. Curiously, the only two nights that he’s not worn them since then have been his worst nights of sleep all week. It may take some getting used to!
Dawson’s first round of meds to help his bladder hasn’t done anything, much like his doctor suspected. D has six more days left of this round, and then we bump of the dosage. This will be the true test, since this is max dosage that he can go up to. I really hope it just gets him to the point of being dry in the day. Really, really hope. We’ll see.
Last week was picture day for the boys. We bribed them into wearing shirts with buttons by taking them to McDonald’s the night before. I must say, my kids are the cutest. Seriously. I was a little crazy on picture day. Last year Dawson and Wes had picture day right before D got sick. By the time the photos came in, Dawson was in the hospital and life as we knew it was changed forever. I had a hard time with the photos – I put them up, but cried every time I saw them for the longest time. And I was stingy, and never gave them to anyone. This year I wanted pictures to show what has changed in the last year, so I made sure the boys were both wearing shorts. I want D to be proud of who he is and how he looks.
We haven’t gotten the photos back yet (well, to be fair, they were taken 3 days ago, so of course we haven’t), but I’m so excited. I even made them pose for some photos before school. Look how cute these guys are!!
Finally, our Sunday is shaping up to be pretty darn awesome. David took the boys shopping today to give me some quiet time at home, but then he called an hour or so into it to say they were on their way home because Wes had an accident at the store. They were home for about 45 minutes, and Wes was going into the bathroom for the 3rd time, and I started to get worried about a UTI or something. And then I saw the 24 ounce water bottle of Wesley’s that I had sent with him when he left with David. It was bone dry. Turns out that in the hourish he was gone, he drank the entire bottle of water (it’s a new bottle. I think it was a novelty to drink out of). Crazy kid!
When David got home with the boys, he got to work outside, cutting up wood and burning it. The boys played outside for awhile, and eventually Wes made his way in to play trains. As I type this up, Wes is playing quietly inside, and Dawson has been outside with David for almost 3 hours. David is burning some wood we had lying around, and D is sitting (a safe distance) by the fire. Dawson has complained a little of pain in his legs, but refuses to take off his feet because he likes being out with David. He’s already informed me that he’s not coming in until “Daddy comes in too.” Good thing I found the sunscreen! We’ll probably see pretty easily tomorrow if I missed any spots…