We are home. It’s been a little crazy. Things haven’t exactly gone as planned. BUT WE ARE HOME!! (I know you know this. I’m just saying it again because it’s awesome.)
Dawson’s first night home (again) was a little crazy. We were told the home health nurse was coming at 6pm, but it turns out we were on the nurse’s calendar for 8pm. She rearranged her schedule and got to our place closer to 7:30pm (you know, right when the boys should be getting ready for bed). We had a lot of paper work to do, and I was immediately taken aback when she made a comment about the nurse that was coming at 8am the next morning. Wait, what? At the hospital, I was told that I could do the meds that night and then going forward. It sounds like typically the nurses do the administering of meds the first time, and then shadow for two times before letting people go on their own. I was NOT a fan of that plan, especially since I wasn’t informed of that when we went over the schedule in the hospital.
On top of that, the nurse asked for permission to take pictures of Dawson’s “wounds.” David and I pushed back on that, just because 1) there was no reason to her to check his grafts since his infection was in his knee cap and 2) beyond that, it’s still fairly traumatic to do dressing changes, and the last thing we need is a STRANGER taking photos.
Unfortunately, I felt like we got off on the wrong foot. The nurse was VERY nice and accommodating. But it was late, Dawson, Wesley, and I were tired, and I just wanted to learn how to administer the meds. There was so much to go through. The nurse realized as we walked through the equipment that I knew more than she expected, though, and allowed me to administer the meds with her supervising closely.
I wasn’t willing to bend in regard to the next morning though – I wanted Dawson back at school…ON TIME. I wasn’t going to wait around for a nurse to come around at 8am. Again, the nurse was very accommodating and came out herself the next morning at 7am to again watch as I gave Dawson his meds…perfectly, if I do say so myself…
We are now officially experts at giving Dawson his antibiotic via his PICC line. I’ve been doing his morning one, David is doing the afternoon one, and we are alternating the late-night one (10:30pm? UGH…).
Dawson’s grafts look AMAZING. Dressing changes are so much easier. There is no more screaming bloody murder. Dawson doesn’t like to see his knee yet (there are scabs that he is not a fan of), but he doesn’t have pain any more. In fact, today at physical therapy, Dawson suddenly got on his hands and knees and said “Look! I’m crawling!” and his PT person and I were like “Nooooo!” because he hasn’t been given the ok to be on his knees yet (hopefully Monday). But that is a HUGE sign. He doesn’t have that knee pain any more. Now it’s just protecting the graft for just a little bit longer until we are sure it’s safe. Dawson has an appointment Monday, and I think we’ll get the ok then.
Dawson had his second day of school today. He’s so happy to be back to both school and daycare. I love his stories. And I just can’t get over Dawson and Wesley’s relationship. I had been so worried about it when we came home, because they weren’t as close as they had been. But things have gotten back to normal. Dawson is bossy, Wes is obedient, and they have a lot of laughs. I tell Wes every night, but he is the BEST brother. I don’t think he ever tells Dawson no when D asks him to get something for him. And tonight they spent a good 20 minutes playing swords with each other, whacking each other and giggling and being awesome.
I’ve been back at work for two days. It’s a little weird to be there and I feel like a fish out of water. I took a some time this afternoon to hang up some photos and switch out some picture frames. I found these photos and had to hang them up. Look how much my boys have changed!
Top photo: November 2010 (Dawson 2 years old, Wes 8 months), Middle photo: May 2011 (Dawson 2.5 years old, Wes 14 months), Bottom photo: May 2012 (Dawson 3.5 years old, Wes 2 years old)
Next week is the first week we will have a TRUE schedule. PT on Mondays and Thursdays (plus an appointment with burn AND another with infectious disease thrown in on Monday), but otherwise, a whole lot of work, daycare, and school. Can’t wait to start to feel like things are normal. I use that term loosely, obviously.