Home! We are home! Very happy to be here.
The final verdict was that Dawson had a staph infection in the tissue of his knee. Yesterday during his sedation he had a PICC line put in, and we were discharged this afternoon. We were hoping to be discharged yesterday, but they were unable to get a home health nurse here to get us situated with the meds and administration of Dawson’s antibiotics.
They delay was good in one respect – how we administer the meds. They had said Dawson was going to be hooked up to a continuous drip that would only have to be changed once every 24 hours. That sounded good, until I saw the little machine that Dawson would have to have with him at all times – it was about the size of a clutch, but relatively heavy. He’d have to wear it either in a fanny pack or a backpack. I thought it would be too much – too cumbersome – for him at daycare. Luckily, the dosage was written as 3x per day, every 8 hours. That’s actually pretty manageable for us, since we have some leeway with the timing. So we decided to NOT have him on the continuous machine, but rather we’ll just administer the meds. We will probably have to do this for about 2 weeks. On top of that, Dawson also has an oral antibiotic to take as well.
We have a home health nurse coming at 6pm to show us how to do the meds. I have a GIANT bag of medical supplies to go through before then – flushes and alcohol wipes and tubing (oh my!).
The best news through all of this is that Dawson is feeling SO much better. He had one incidence of knee pain on Sunday night, but other than that, he hasn’t complained of knee pain since his surgery. His graft site looks AMAZING. It looks just like his other grafted skin, it just has some additional scabbing. D’s donor site is still incredibly painful, but that pain is well managed and really is only irritated when we have to change the mepilex dressing (a dressing that protects the wound without sticking to it) on it, which is thankfully only every other day.
Dawson is able to: go to school. Go to daycare. Resume PT. Get back to LIFE. Woohoo! His left leg is obviously now even more behind in terms of movement, but we can work on it. Next Monday will be a busy day, with Dawson having 4K in the morning, and then 3 different appointments – PT, one in the burn clinic to check his grafts, and one with Infectious Disease to draw some labs.
Soo happy he’s home!!