If you would have asked me last night if Dawson was going home today, I would have said no. Dawson had a rough afternoon yesterday. I woke him up finally at 4pm and he was awake for all of 3 hours – and he was complaining of pain in his donor site (upper left leg) that entire time. I thought for sure his night would be equally rough, and we’d be struggling to manage his pain.
I went home with Wes, and David stayed with Dawson. When I called to check in right away this morning, I was expecting the worst. But nope – his pain was managed all night. YAY! No pain or crying at all. When I got back to the hospital at 8:30 this morning, the old Dawson was back. Chatting, happy. He has mentioned that his upper leg is sore, but nothing too bad.
We met with the team. Basically everyone and their brother do rounds Wednesday morning – surgeon, residents, nurses, PT, OT, social worker, etc. We outlined what our concerns were for going home, which were pretty simple – 1) What tools do we have for pain management if his pain escalates? 2) What do we need to be keeping an eye out in terms of his knee (if anything)? and 3) what is the plan for his dressing changes?
Those questions were pretty easily answered – yay! After going around and around, we did decide to put him back on his lowest dose of methadone. That, plus his other current meds, should hopefully mange his pain. As for what we need to keep an eye on in respect to his knee – well, since his leg will be wrapped the entire time he’s home, we won’t be able to go off of visuals, but rather what Dawson tells us about pain. If it drastically escalates, we call. And finally, the sedation was pretty easily resolved, and I am SO happy with what they decided – Dawson will go back to the burn unit Friday and Monday mornings for 8am sedation dressing changes. Familiar place, familiar procedure – early in the morning. Beautiful.
We had a special visitor this morning. Amy, from the company that does prosthesis, stopped by. Because Dawson’s right leg is basically completely healed, he’s now ready to start working on wearing a silicone-like sock. It will be tighter than his current derma fit, giving him more compression, and will also help loosen up the skin. Grafted skin gets pretty tight – if you put your fingers to your skin right now and move your finger around gently, your skin moves, too. If grafted skin isn’t worked enough, it starts sticking to the bone, so to speak. Dawson definitely has that in places, even though we’ve been working on scar massage. This new sock will help loosen up his skin, provide compression, and get him ready for prosthesis. It also provides a little more protection to his legs than his current derma fit does, which is nice. We will get the socks for his right leg Friday morning, and will start slowly getting Dawson used to them. It’s an exciting step!
Once we knew we could be discharged, the ball got rolling pretty quickly. We were able to head out just after lunch!
Let’s be honest here: 1 chip, 2 bites of sandwich, 2 bites of applesauce, 4 bites of soup, the entire apple juice container, and 2 bites of chocolate cake.
We are now home. Dawson is happy to be home…and at 7pm, he’s already almost asleep. Wesley is happy to have him home. Wes really feels it when Dawson is gone. I was sleeping with Wes last night, and around 2am, I felt him throw his arm around me (seriously…I told you he’s a snuggler), and then I heard him whisper “Mommy? Why is Dawson still in the hospital?” So sweet and sad at the same time. Three year-olds shouldn’t be thinking about that in the middle of the night.
The next few days will be new territory for us. Tomorrow David will be at home with D, Wes will be at daycare, and I’ll be at work – all day! Friday morning Dawson goes in for sedation and David heads out of town for an admittedly much-needed boys weekend, and Wes will hang out with Grandpa Bruce and Grandma Ginny Friday night. Saturday night I MAY go a little crazy with both boys, but it will probably be worth it. Hopefully. Maybe. I’ll just make sure to stock up on lots of ice cream (for me, not for them).
I sure do like being back at home. We all do!