It’s been a rough week in the Henry house.
On Monday we got some unexpected news after taking Dawson for a check with his urologist. I was expecting a quick appointment. Dawson had a scheduled ultrasound before the appointment, which I figured was just to check things out since I had some question about bladder control. During the ultrasound, they took pictures of his bladder and kidneys. Near the end of the ultrasound, D announced he had to go to the bathroom, so they ended up asking for post-bathroom ultrasound shots too.
The unexpected news came as a result of the ultrasounds. I’m going to be vague with some details here because honestly, I just wasn’t expecting the news that I got, so I didn’t process it well. I asked good questions, and promptly forgot most of the answers. Basically, Dawson’s bladder is smaller than it should be – no big surprise. But the bladder wall (the muscles that control the bladder) are thicker than they should be, meaning they are having to work too hard.
Additionally, something is going on with his kidneys. This is where I get really hazy (sorry). I think they are larger than they should be. What I DO remember is that on a scale of 1-4, his kidneys are are 3.5-4. It sounds terrifying, but right now it’s at an “let’s keep an eye on it stage” – they need to be monitored every 3-6 months. So that’s comforting, even if I don’t exactly remember what the issues are.
What they do know is that it looks like his ureter (what brings the urine from the kidneys to the bladder, if I remember correctly) is damaged. Extent of the damage isn’t known, but I think the urine isn’t leaving the kidneys like it should.
All of this means another trip to the operating room to try to get a better look and assessment of what’s going on his Dawson’s bladder and ureter. It’s a trip to the OR because of the way they take a look at the bladder (use your imagination). Needless to say, a 5 year-old would NEVER sit still for that. Luckily, it’s a relatively simple procedure, and I was actually expecting a call last week to get it scheduled, so I expect that we will know more this week.
I left the appointment feeling VERY shell-shocked. The news isn’t awful, by any means. I just wasn’t expecting to hear that there were any residual issues. I knew in the beginning that there was worry about internal organs being damaged from the purpura, but I figured we were past that…that we would have known by know. Obviously, we are still learning.
The week ended with sickness. I developed a nasty cold starting Wednesday afternoon. Dawson had a stomach bug Thursday. I was home Friday with the boys since daycare was closed, and we had an awesome morning. Dawson had rebounded, Wes was doing great, so we made brownies and had a blast…and then Wes came down with the same bug Friday afternoon. And let’s just say that we did a LOT of carpet cleaning as a result of getting the “yuckies” out.
Luckily, by this morning the boys were 100%. I’m about 60%, which when you have kids is close enough. We took a trip out to my work to have David hang some photos in my office and let the boys run off some energy. They were so excited to go.
First stop: the slide.
After leaving the slide, David and I were walking together, talking about an article that was sent to us (thank you Mary, Beth and Sarah!!), and not paying attention to the boys, when we realized they were walking like this:
They SLAY me with their cuteness.
We got to the building with the tractor and Dawson was SO excited to sit on it. Wes, not so much. Dawson had a lot of questions about the tractor that we couldn’t answer, so we told him we’d come back with Grandpa Phil sometime so he could answer his questions.
The boys have been SO good this weekend. They have played for hours on end together, no fighting. Among the things overheard:
“Let’s be ninjas and fight the bad guys.”
“Let’s play Mario and Luigi.” “Luigi. Wh…wh…Luigi. Luigi starts with W, like me!”
“We don’t have any toys left in our red toy bin!!!!!” (They managed to empty every single toy they have in their bedroom to the bedroom floor. It was impossible to walk in their room.)
“I bumped my elbow.” (This one made us laugh for a VERY long time. It’s from the movie Epic, and Wesley said it just like it’s said in the movie. It was out of the blue, and absolutely hilarious. And it was then repeated about 89 times throughout the night.)
We are hoping for a better week this week. I’m going to call on Monday to find out when we can schedule D’s OR visit, since my impression was that we would be doing it sooner rather than later. On Wednesday Wesley has 4K screening. Besides occasionally getting confused about his middle name (Earl, not Phillip!), he’s going to knock it out of the park. And on Friday, Dawson has a pretty exciting appointment. Once a month there is an “amputee clinic” where his doctor (in this case, his admitting doctor from his inpatient rehab stay), his prosthetist, and (come April) his physical therapists all meet with him together to see how things are going. I’m really excited for this appointment. It will be good to have everyone all in one place to see where he is at with progress, something we haven’t had since he left the hospital last month.
EDIT (ABOUT AN HOUR AFTER POSTING): Spoke too soon. Turns out Wesley is still sick. Poor bug.